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  • Home
  • About
  • Contact Us
  • Help Us Grow
  • Paid Link Disclosure
  • Privacy Policy
  • Know Autism, Know Your Child
  • New Information
  • Previous BLOGs Good Ideas
  • FREE BOOK UNIT #1 HOW WILL I KNOW? Red Flags & Checklist
  • FREE BOOK UNIT #2 WHY IS IT AUTISM? Diagnosis & DSM-5
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023 Eating & Toileting
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023
  • #3C Social & Daily Living Skills
  • #4 Programs/Interventions/Therapies INTRO.#4A,#4B,#4C
  • #4A Behavior & Communication Programs ABA,DIR, OT, PECS
  • #4B1 Programs/Intervention/Therapies (5-8): RDI, SPD, ST, TEAACH, & CBT
  • #4B2 More Programs/Therapies/Approaches; Meds, Diet, Bio Therapy
  • #4C CAMs Complementary & Alternative Medicine
  • #4C1 CAMs Cont. Animal Assisted Therapy
  • #4C2 CAMs Creative & Adventure Therapy
  • #4C3 Last of CAMs Cont. 6. - 12.
  • #5 Know Your Child: INTRODUCTION
  • #5A Know Your Child: GETTING STARTED
  • #5B Know Your Child: TEMPERAMENT
  • #5C Know Your Child KNOW AUTISM
  • #5D Know Your Child: RESOURCES & INSURANCE
  • #5E Know Your Child: LAW & AUTISM
  • GALLERY SLIDESHOW
  • *PREVIEW Books in Gallery
    • AMAZING ADVENTURES Extended Book Reviews
    • DIAGNOSIS, DOCTORS, & DENIAL Extended Book Reviews
    • SAVVY SOLUTIONS Extended Book Reviews
    • SCHOOL ON THE SHORT BUS Extended Book Reviews
  • *WHAT TO DO while you wait. 1-5
    • #1 What to do While You Wait, Checklists & Red Flags
    • #2 What to do While You Wait: Diagnosis, Denial & Doctors
    • #3 What to do While You Wait: Try New Things
    • #4 What to do While You Wait: Programs, Therapies, & Interventions
    • #5 What to do While You Wait: Know Your Child
  • ExtendedBookReviews~
  • Rules for David
  • A Friend Like Henry & All Because of Henry
  • No You Don't
  • Twirling Naked
  • Survival Guide
  • A Spot on the Wall
  • Child's Journey Out of Autism
  • Paula's Journal
  • How Can I Talk
  • 101 & 1,001 Tips
  • Hello, My Name is Max
  • What Color is Monday?
  • Spinning in Circles
  • Miracles Are Made
  • Secondhand Autism
  • I Wish I Were Engulfed in Flames:
  • 3500: An Autistic Boy's
  • Ido in Autismland
  • The Journey to Normal
  • All I Can Handle
  • He's Not Autistic, But...
  • The Horse Boy
  • Building in Circles
  • Autism Goes to School
  • I Am In Here
  • The Aspie Parent
  • Seeing Ezra: A Mother's Story
  • Autism: Turning on the Light
  • Autism: Why I Love Kids
  • Autism: Triplet Twist
  • Someone I'm With Has Autism
  • Making Peace with Autism
  • The ABC's of Autism Acceptance
  • The Long Ride Home
  • Autism by Hand
  • Knowing Autism
  • Autism Belongs
  • A Real Boy
  • A Curious Incident of the Dog in the Night
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LATEST BLOG POSTING...

BLACK HISTORY MONTH: Children of Color with Autism

2/8/2021

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Picture
 BLACK HISTORY MONTH: Children of Color with Autism 
with < My Thoughts > by Sara Luker

Williams (2010) wants us to know that when mainstream America catches a cold, communities of color catch pneumonia. This applies particulary when it comes to autism and other developmental disorders. Children of color are more often misdiagnosed or not properly treated for these disorders than their 'White' counterparts. "My son was diagnosed when he was 2 years old. I'm connected to mainstream media, but I had never seen people of color with autism. That was when I saw a need for autism information in our community," she said.

Burkett, et al. (2015) believe that cultural factors such as 'limited health care access' impacts timely diagnosis and treatment for African American children with autism. This health care disparity delay is said to be 1.6 years behind that of a Caucasian child's diagnosis. And, is more likely to first be diagnosed as an intellectual disability, rather than an autism diagnosis. 
 
Children of color are more often misdiagnosed, compared to other children. Also, certain cultural differences may distort the interpretation of the family’s reporting of their child’s symptoms. And, may confuse the severity of the diagnosis, and create a diagnostic bias. 
 
Historically, inequities in healthcare persist in many disenfranchised communities. Other healthcare disparities may include whether or not families become immobilized when getting the ‘autism’ diagnosis. While most parents of newly diagnosed children search online for information and direction, many families of color do not have internet access.
 
Krezmien, et al. (2017) know that maladaptive behaviors such as verbal and physical aggression of school age African American children will be dealt with by suspending them from class. Suspension will happen before the school system would begin identifying them with a developmental disability such as autism. Disciplinary suspension of children does not improve the outcome, in fact this disciplinary action may become especially harmful for children with autism or intellectual disabilities. 
 
< My Thoughts >       “…children with autism or intellectual disabilities.’’
 
Verbal and physical aggression in school age children from any culture is often a ‘response’ to unidentified ‘learning disabilities’, sensory issues’, and/or autism. In most cases, the child doesn’t want to 'give you' a bad time – the child 'is having' a bad time!
 
Note:  Writing, using and quoting the necessary semantics such as – children of color, Black, White, African American, Caucasian, 'other', etc. – has always been uncomfortable for me. Now I can add to that list, children with autism, autistic, atypical, neuro-typical, etc.
 
REFERENCES
 
Ben-Sasson, A., Cermak, S., et al. (2007). Extreme Sensory Modulation Behaviors in Toddlers with Autism Spectrum Disorders; American Journal of Occupational Therapy; V61; p 584-592.
 
Burkett, K., Morris, E., et al. (2015). African American Families on Autism Diagnosis & Treatment: The Influence of Culture; Journal of Autism & Developmental Disorders; V45, p3244-3254.
 
Kremien, M., Travers, J., et al. (2017). Suspension Rates of Students with Autism or Intellectual Disabilities in Maryland from 2004-2015; Journal of Intellectual Disability Research; V61:11, p1011-1020.
 
Williams, J. (2010). Autism Hits Hard In Communities of Color; New York Amsterdam News; V101:18, p29.
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    Author

         Just to let you know that I, Sara Luker, have put forth my best efforts in presenting what I have learned over my 30 years with autism, Sharing Extended Book Reviews of  stories about those who have gone before us.      
         Understand that all health matters ALWAYS require medical decisions/diagnosis/treatment by highly qualified and licensed individuals. See website DISCLAIMER.

         Here you will find excerpts containing a combination of selections, synopses, general information prose, quotes and references to peer-reviewed articles.

         Plus < My Thoughts >, which are my responses to the material; as a state certified educator with a 2013 Master’s Degree in Special Education, and over 30 years as Sonny’s mom.

         The BLOGs on this site are meant to be insightful and timely. Comments and Responses are welcomed.

         The offered DOWNLOAD material is organized in UNITs and Chapters. The autism information comes from –

    *Peer-reviewed scientific journal articles, informational     and educational-writer articles.

    *Prose, which explains the currently circulating general public knowledge.

    *Personal, < My Thoughts > which are ‘educated   guesses’ about what it all means.

    *Poignant synopses of published parent stories.

    *Pages filled with decisions, denial, cited references, definitions, appendices, and more.

     Hearing the words “this child has autism,” parents are often shell-shocked.

         Then, in the face of so many more questions racing through their minds, the doctor says, “Just go online and read everything you can about autism.”

         
    Yes, disturbingly this kind of professional advice is given to many of our families.

    ​  If you are one of those families, or clinicians, I hope this material will give you a good start.
     


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