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  • FREE BOOK UNIT #1 HOW WILL I KNOW? Red Flags & Checklist
  • FREE BOOK UNIT #2 WHY IS IT AUTISM? Diagnosis & DSM-5
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023 Eating & Toileting
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023
  • #3 Social & Daily Living Skills
  • FREE BOOK UNIT #4 When is it Sensory?
  • FREE BOOK UNIT #4 SENSORY, Cont.
  • FREE BOOK UNIT #4 SENSORY, Chapter 3
  • FREE BOOK UNIT #5, Ch. 1 & 2, What To Do While You Wait?
  • FREE BOOK UNIT #5, Ch. 3 & 4, What To Do While You Wait? Cont.
  • FREE BOOK UNIT 6 CH 1 – Where to Look for Resources?age
  • #4A Behavior & Communication Programs ABA,DIR, OT, PECS
  • #4B1 Programs/Intervention/Therapies (5-8): RDI, SPD, ST, TEAACH, & CBT
  • #4B2 More Programs/Therapies/Approaches; Meds, Diet, Bio Therapy
  • #4C CAMs Complementary & Alternative Medicine
  • #4C1 CAMs Cont. Animal Assisted Therapy
  • #4C2 CAMs Creative & Adventure Therapy
  • #4C3 Last of CAMs Cont. 6. - 12.
  • #5 Know Your Child: INTRODUCTION
  • #5A Know Your Child: GETTING STARTED
  • #5B Know Your Child: TEMPERAMENT
  • #5C Know Your Child KNOW AUTISM
  • #5D Know Your Child: RESOURCES & INSURANCE
  • #5E Know Your Child: LAW & AUTISM
  • GALLERY SLIDESHOW
  • *PREVIEW Books in Gallery
    • AMAZING ADVENTURES Extended Book Reviews
    • DIAGNOSIS, DOCTORS, & DENIAL Extended Book Reviews
    • SAVVY SOLUTIONS Extended Book Reviews
    • SCHOOL ON THE SHORT BUS Extended Book Reviews
  • *WHAT TO DO while you wait. 1-5
    • #1 What to do While You Wait, Checklists & Red Flags
    • #2 What to do While You Wait: Diagnosis, Denial & Doctors
    • #3 What to do While You Wait: Try New Things
    • #4 What to do While You Wait: Programs, Therapies, & Interventions
    • #5 What to do While You Wait: Know Your Child
  • ExtendedBookReviews~
  • Rules for David
  • A Friend Like Henry & All Because of Henry
  • No You Don't
  • Twirling Naked
  • Survival Guide
  • A Spot on the Wall
  • Child's Journey Out of Autism
  • Paula's Journal
  • How Can I Talk
  • 101 & 1,001 Tips
  • Hello, My Name is Max
  • What Color is Monday?
  • Spinning in Circles
  • Miracles Are Made
  • Secondhand Autism
  • I Wish I Were Engulfed in Flames:
  • 3500: An Autistic Boy's
  • Ido in Autismland
  • The Journey to Normal
  • All I Can Handle
  • He's Not Autistic, But...
  • The Horse Boy
  • Building in Circles
  • Autism Goes to School
  • I Am In Here
  • The Aspie Parent
  • Seeing Ezra: A Mother's Story
  • Autism: Turning on the Light
  • Autism: Why I Love Kids
  • Autism: Triplet Twist
  • Someone I'm With Has Autism
  • Making Peace with Autism
  • The ABC's of Autism Acceptance
  • The Long Ride Home
  • Autism by Hand
  • Knowing Autism
  • Autism Belongs
  • A Real Boy
  • A Curious Incident of the Dog in the Night
  • LATEST BLOG POSTING...
  • Home
  • About
  • Contact Us
  • Help Us Grow
  • Paid Link Disclosure
  • Privacy Policy
  • Know Autism, Know Your Child
  • New Information
  • Previous BLOGs Good Ideas
  • FREE BOOK UNIT #1 HOW WILL I KNOW? Red Flags & Checklist
  • FREE BOOK UNIT #2 WHY IS IT AUTISM? Diagnosis & DSM-5
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023 Eating & Toileting
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023
  • #3 Social & Daily Living Skills
  • FREE BOOK UNIT #4 When is it Sensory?
  • FREE BOOK UNIT #4 SENSORY, Cont.
  • FREE BOOK UNIT #4 SENSORY, Chapter 3
  • FREE BOOK UNIT #5, Ch. 1 & 2, What To Do While You Wait?
  • FREE BOOK UNIT #5, Ch. 3 & 4, What To Do While You Wait? Cont.
  • FREE BOOK UNIT 6 CH 1 – Where to Look for Resources?age
  • #4A Behavior & Communication Programs ABA,DIR, OT, PECS
  • #4B1 Programs/Intervention/Therapies (5-8): RDI, SPD, ST, TEAACH, & CBT
  • #4B2 More Programs/Therapies/Approaches; Meds, Diet, Bio Therapy
  • #4C CAMs Complementary & Alternative Medicine
  • #4C1 CAMs Cont. Animal Assisted Therapy
  • #4C2 CAMs Creative & Adventure Therapy
  • #4C3 Last of CAMs Cont. 6. - 12.
  • #5 Know Your Child: INTRODUCTION
  • #5A Know Your Child: GETTING STARTED
  • #5B Know Your Child: TEMPERAMENT
  • #5C Know Your Child KNOW AUTISM
  • #5D Know Your Child: RESOURCES & INSURANCE
  • #5E Know Your Child: LAW & AUTISM
  • GALLERY SLIDESHOW
  • *PREVIEW Books in Gallery
    • AMAZING ADVENTURES Extended Book Reviews
    • DIAGNOSIS, DOCTORS, & DENIAL Extended Book Reviews
    • SAVVY SOLUTIONS Extended Book Reviews
    • SCHOOL ON THE SHORT BUS Extended Book Reviews
  • *WHAT TO DO while you wait. 1-5
    • #1 What to do While You Wait, Checklists & Red Flags
    • #2 What to do While You Wait: Diagnosis, Denial & Doctors
    • #3 What to do While You Wait: Try New Things
    • #4 What to do While You Wait: Programs, Therapies, & Interventions
    • #5 What to do While You Wait: Know Your Child
  • ExtendedBookReviews~
  • Rules for David
  • A Friend Like Henry & All Because of Henry
  • No You Don't
  • Twirling Naked
  • Survival Guide
  • A Spot on the Wall
  • Child's Journey Out of Autism
  • Paula's Journal
  • How Can I Talk
  • 101 & 1,001 Tips
  • Hello, My Name is Max
  • What Color is Monday?
  • Spinning in Circles
  • Miracles Are Made
  • Secondhand Autism
  • I Wish I Were Engulfed in Flames:
  • 3500: An Autistic Boy's
  • Ido in Autismland
  • The Journey to Normal
  • All I Can Handle
  • He's Not Autistic, But...
  • The Horse Boy
  • Building in Circles
  • Autism Goes to School
  • I Am In Here
  • The Aspie Parent
  • Seeing Ezra: A Mother's Story
  • Autism: Turning on the Light
  • Autism: Why I Love Kids
  • Autism: Triplet Twist
  • Someone I'm With Has Autism
  • Making Peace with Autism
  • The ABC's of Autism Acceptance
  • The Long Ride Home
  • Autism by Hand
  • Knowing Autism
  • Autism Belongs
  • A Real Boy
  • A Curious Incident of the Dog in the Night
WWW.SARASAUTISMSITE.COM

LATEST BLOG POSTING...

Memorial Day 2021

5/31/2021

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One out of every 88 military children is diagnosed with autism spectrum disorder (ASD). Also known simply as autism – a group of complex brain development disorders characterized by difficulties in social interaction, verbal and nonverbal communication, and repetitive behaviors. The most obvious signs and symptoms of autism typically emerge around age 2 or 3, and, unfortunately, the number of diagnosed autism cases is steadily increasing in the U.S.
 
An Overview of Veteran's Benefits / Special Needs Alliance; Retrieved online from –  https://www.specialneedsalliance.org/the-voice/veterans-benefits//, says...
 
“As our nation commemorates Veterans Day, honoring and remembering those who have served and sacrificed, it is an appropriate time to consider the financial, medical, and other assistance available to veterans, their families and survivors.”
 
You might find this, and similar VA websites helpful to explore. There are VA Aid & Alliance benefits which can provide monies for veterans who need assistance with basic activities of living.
 
A VA pension also benefits dependents and survivors, with like compensation for minor children and adult children who became disabled before age 18 can be eligible for pension benefits. 
​
< My Thoughts >    "...disabled before age 18..."
 Autism is a 'disorder' which classifies as a 'disability' when qualifying for 'benefits' in the insurance world.

The VA also has a program called CHAMPVA, which shares the cost of health care services and supplies with eligible beneficiaries. Spouses and minor children, and in some cases disabled adult children, are eligible for this benefit. Just so you know.

Thank you for your service, to all Veterans and their families.
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sUPERPOWER

5/18/2021

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Greta Thunberg - ASD 'Superpower', with < My Thoughts > by Sara Luker

Greta Thunberg’s “A Year to Change the World” on PBS through BBC was worth watching, according to Brinlee (2021). Greta believes it is her moral duty as a human being to do everything she can to help the world understand about the urgency of climate change.
​
Years earlier from her home in Sweden, Thunberg had no idea, when she began skipping school to strike for climate change awareness, that she would spark a huge global climate change movement.

Now, the 21-year-old states that, "There are people everywhere, screaming in protest. It’s quite exhausting, especially when you have Asperger’s.” Greta, the youthful face of global climate change, shared that she was diagnosed with autism, as an adolescent.

Because of her autism, Fletcher (2021) states that Thunberg found regular school ‘overstimulating’ so she switched to a special school with a 5-student classroom. Then after her school strikes became so successful, she took a year off to begin a more extensive climate change campaign. But, her international travel would be cut short with the rise of the COVID-19 pandemic.

While hoping to inspire people everywhere, DeSantis (2019) says that Greta found that many people were still listening to her words of determination. In spite of, or perhaps because of her Asperger’s, the passion and unending focus on her mission grew. She felt that it was to her advantage having the ability to ‘think outside the box’. And while viewing the world in ‘stark terms’, to be swept away by focusing on a global pattern was to her benefit.

Acknowledging that Greta Thunberg considers her Asperger’s may make her look at things differently, but it’s okay, because she considers that her ‘superpower’.

< My Thoughts >          “…considers that her ‘superpower’.”
​

Wielding her ‘superpower’, Greta has been known to ask “Where are the adults?” I’m not certain what she means by that, but as adults go about their daily lives, it seems that they might want to consider their children and the future global world they will inherit.

REFERENCES –

Brinlee, M. (2021). Greta Thunberg On Attending Protests with Asperger’s: “It’s Quite Exhausting”; Retrieved online from – https://www.romper.com/entertainment/exclusive-greta-thunberg-pbs-series-aspergers-syndrome/

DeSantis, R. (2019). Now the Youngest ‘TIME’ Person of the Year: Destroys Asperger’s Stigma; Retrieved online from – https://people.com/human -interest/how- greta-thunberg-destroys-aspergers-stigma/

Fletcher, H. (2019). Climate Change Marches are Hard with Asperger’s Syndrome; Retrieved online from – https://metro.co.uk/2021/04/06greta-thunberg-climate-change-marches-are-very-hard-with-aspergers/
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MAY IS MENTAL HEALTH MONTH

5/9/2021

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#BLOG #MentalHealthMonth (May 2021) www.sarasautismsite.com
#School may be suddenly starting for some. #Students on the #autism spectrum may be resistant to this #change and #parents may feel #challenged. Keeping a #positive outlook is important for both students and parents.

​Shochet, et al. (2016) say that there is limited research on effective preventative approaches for adolescents with autism and mental health problems. But two interrelated deficits which seemed to have emerged and proved to be important were a lack of an individual’s – ‘connectedness’ and ‘resilience’. These ‘protective factors’, when missing, increase an individual’s weaknesses, and/or a negative outlook.
  1. ‘Connectedness’, namely a sense of belonging, especially in school.
  2. ‘Resilience’, the capacity of coping and self-regulation in the face of stress.
‘Connectedness’ is achieved when one feels a sense of ‘belonging’ to a desirable social group.

This becomes especially important during the transition from elementary to secondary school; and from secondary school into adulthood. When a person perceives that their peers are less excepting, or that they are prevented from having an opportunity to learn in an ‘inclusion’ (general education) classroom; those with autism are more likely to become distressed, or even depressed. Depression, in turn may keep them from pursuing higher schooling, or from beginning a successful career path. This study found that evidence-based ‘group therapy’ treatment programs were helpful to build one’s ‘connectedness’ to society.
​
< My Thoughts >   “…‘protective factors’…”

Five ‘protective factors’ which work to strengthen ‘positive’ perception, thus diminishing negative thoughts or perception of events, are –
  1. Parental resilience (Parents who encourage their child to persevere towards the ‘positive’, instead of perseverating on the ‘negative’.)
  2. Social connections (Participate in social group activities, which can include siblings.)
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  1. Concrete support (Constant ‘’interest’ which can easily be seen, heard, and felt.)
  2. New knowledge & understanding (Providing new ‘positive’ skills, thoughts, and learning from those who truly understand.)
  3. Achieving social/emotional competence (Having opportunities to take positive risks and enjoy positive outcomes.)

​When the above factors are available, they work together to help an individual with autism ‘protect’ and promote their ‘positive’ view of their world. A healthy perception can become everything.

Important to achieving ‘resilience’ is the ability to focus on one’s strengths instead of deficits. ‘Resilience’ requires ‘theory of mind (ToM). The authors state that the ability to freely seeing another’s perspective and/or point of view is critical to becoming resilient. ‘Resilience’ is inhibited by one’s failure to understand perspective, and also by never overcoming negative risk factors. Anxiety prevention programs, as well as understanding ‘healthy risk taking’, promoted by ‘positive protective factors’ and ‘decreasing negative risks’, are all vital to strong wellbeing and mental health.

Shochet says his study found that individuals with autism varied greatly in terms of ‘symptom expression’ and ‘levels of functioning’ throughout their lifespan. But, that they will find a ‘positive’ mental health trajectory by identifying how well they feel ‘connected’ and/or ‘resilient’ to life’s often constant changes and challenges.

Hoch & Youssef (2019) have revealed that children with ASD may be under-identified for ‘trauma’ exposure and under-served for ‘treatments’ to address trauma and other mental health diagnoses. While the most commonly discussed issue is Post Traumatic Stress Disorder (PTSD), such as depression and anxiety, sensitivity to non-threatening noises and other stressors can lead to ‘response stressors’ which may also act to disrupt daily rhythms.

Parents are also susceptible to unwanted stress, especially when raising several children; and specifically, when one of the children has ASD. Parent’ perceptions of their own abilities are influenced by their own individual ‘coping styles’ and an underlying ‘belief systems’.

Ang & Loh (2019) found that Moms are more likely than fathers to blame themselves for their child’s problems. Despite the challenges of raising a child with autism, parents found that they can also experience benefits. Fathers stated that they enjoyed being increasingly more involved in the daily care of their child; some shifting from breadwinner to a more co-parenting role.

Understanding what a child with autism ‘wants’ can be difficult depending on the severity of the child’s autism, it may be even be nearly impossible. Both parents are often more susceptible to the community being critical to the child’s public behavior.

They found that parents with more support from the family and the community had less depression, anger, and anxiety. Their ‘coping style’ also had an impact on their mental health. Here are some of the successful ‘coping styles’ mentioned –
  • Active-avoidance coping (actively attempting to avoid stressors)
  • Problem-focused coping (anticipating, planning for, & managing the problem ahead of time)
  • Positive coping (using humor & reframing the issue)
The study showed that constantly knowing and using their ‘coping style’ seemed to help parents, avoid situational stress and mental health issues for the child and for themselves.

REFERENCES:

Ang, K. & Loh, P. (2019). Mental Health & Coping in Parents of Children with Autism Spectrum Disorder (ASD) in Singapore: An Examination of Gender Role in Caring; Journal of Autism & Developmental Disorders; V49, p2129-2145.

Hoch, J., & Youssef, A. (2019). Predictors of Trauma Exposure & Trauma Diagnoses for Children with Autism &Developmental Disorders Served in a Community Mental Health Clinic; Journal of Autism & Developmental Disorders; V50, p634-649.

Shochet, I., Saggers, B., et al. (2016). The Cooperative Research Centre for Living with Autism (Autism CRC) Conceptual Model to Promote Mental Health for Adolescents with ASD; Clinical Child & Family Psychology Review; V19, p94-116.
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    Author

         Just to let you know that I, Sara Luker, have put forth my best efforts in presenting what I have learned over my 30 years with autism, Sharing Extended Book Reviews of  stories about those who have gone before us.      
         Understand that all health matters ALWAYS require medical decisions/diagnosis/treatment by highly qualified and licensed individuals. See website DISCLAIMER.

         Here you will find excerpts containing a combination of selections, synopses, general information prose, quotes and references to peer-reviewed articles.

         Plus < My Thoughts >, which are my responses to the material; as a state certified educator with a 2013 Master’s Degree in Special Education, and over 30 years as Sonny’s mom.

         The BLOGs on this site are meant to be insightful and timely. Comments and Responses are welcomed.

         The offered DOWNLOAD material is organized in UNITs and Chapters. The autism information comes from –

    *Peer-reviewed scientific journal articles, informational     and educational-writer articles.

    *Prose, which explains the currently circulating general public knowledge.

    *Personal, < My Thoughts > which are ‘educated   guesses’ about what it all means.

    *Poignant synopses of published parent stories.

    *Pages filled with decisions, denial, cited references, definitions, appendices, and more.

     Hearing the words “this child has autism,” parents are often shell-shocked.

         Then, in the face of so many more questions racing through their minds, the doctor says, “Just go online and read everything you can about autism.”

         
    Yes, disturbingly this kind of professional advice is given to many of our families.

    ​  If you are one of those families, or clinicians, I hope this material will give you a good start.
     


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