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  • #5 Know Your Child: INTRODUCTION
  • #5A Know Your Child: GETTING STARTED
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  • #5E Know Your Child: LAW & AUTISM
  • GALLERY SLIDESHOW
  • *PREVIEW Books in Gallery
    • AMAZING ADVENTURES Extended Book Reviews
    • DIAGNOSIS, DOCTORS, & DENIAL Extended Book Reviews
    • SAVVY SOLUTIONS Extended Book Reviews
    • SCHOOL ON THE SHORT BUS Extended Book Reviews
  • *WHAT TO DO while you wait. 1-5
    • #1 What to do While You Wait, Checklists & Red Flags
    • #2 What to do While You Wait: Diagnosis, Denial & Doctors
    • #3 What to do While You Wait: Try New Things
    • #4 What to do While You Wait: Programs, Therapies, & Interventions
    • #5 What to do While You Wait: Know Your Child
  • ExtendedBookReviews~
  • Rules for David
  • A Friend Like Henry & All Because of Henry
  • No You Don't
  • Twirling Naked
  • Survival Guide
  • A Spot on the Wall
  • Child's Journey Out of Autism
  • Paula's Journal
  • How Can I Talk
  • 101 & 1,001 Tips
  • Hello, My Name is Max
  • What Color is Monday?
  • Spinning in Circles
  • Miracles Are Made
  • Secondhand Autism
  • I Wish I Were Engulfed in Flames:
  • 3500: An Autistic Boy's
  • Ido in Autismland
  • The Journey to Normal
  • All I Can Handle
  • He's Not Autistic, But...
  • The Horse Boy
  • Building in Circles
  • Autism Goes to School
  • I Am In Here
  • The Aspie Parent
  • Seeing Ezra: A Mother's Story
  • Autism: Turning on the Light
  • Autism: Why I Love Kids
  • Autism: Triplet Twist
  • Someone I'm With Has Autism
  • Making Peace with Autism
  • The ABC's of Autism Acceptance
  • The Long Ride Home
  • Autism by Hand
  • Knowing Autism
  • Autism Belongs
  • A Real Boy
  • A Curious Incident of the Dog in the Night
  • LATEST BLOG POSTING...
  • Home
  • About
  • Contact Us
  • Help Us Grow
  • Paid Link Disclosure
  • Privacy Policy
  • Know Autism, Know Your Child
  • New Information
  • Previous BLOGs Good Ideas
  • FREE BOOK UNIT #1 HOW WILL I KNOW? Red Flags & Checklist
  • FREE BOOK UNIT #2 WHY IS IT AUTISM? Diagnosis & DSM-5
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023 Eating & Toileting
  • FREE BOOK UNIT #3 PRIORITIZE CONCERNS 2023
  • #3 Social & Daily Living Skills
  • FREE BOOK UNIT #4 When is it Sensory?
  • FREE BOOK UNIT #4 SENSORY, Cont.
  • FREE BOOK UNIT #4 SENSORY, Chapter 3
  • FREE BOOK UNIT #5, Ch. 1 & 2, What To Do While You Wait?
  • FREE BOOK UNIT #5, Ch. 3 & 4, What To Do While You Wait? Cont.
  • FREE BOOK UNIT 6 CH 1 – Where to Look for Resources?age
  • #4A Behavior & Communication Programs ABA,DIR, OT, PECS
  • #4B1 Programs/Intervention/Therapies (5-8): RDI, SPD, ST, TEAACH, & CBT
  • #4B2 More Programs/Therapies/Approaches; Meds, Diet, Bio Therapy
  • #4C CAMs Complementary & Alternative Medicine
  • #4C1 CAMs Cont. Animal Assisted Therapy
  • #4C2 CAMs Creative & Adventure Therapy
  • #4C3 Last of CAMs Cont. 6. - 12.
  • #5 Know Your Child: INTRODUCTION
  • #5A Know Your Child: GETTING STARTED
  • #5B Know Your Child: TEMPERAMENT
  • #5C Know Your Child KNOW AUTISM
  • #5D Know Your Child: RESOURCES & INSURANCE
  • #5E Know Your Child: LAW & AUTISM
  • GALLERY SLIDESHOW
  • *PREVIEW Books in Gallery
    • AMAZING ADVENTURES Extended Book Reviews
    • DIAGNOSIS, DOCTORS, & DENIAL Extended Book Reviews
    • SAVVY SOLUTIONS Extended Book Reviews
    • SCHOOL ON THE SHORT BUS Extended Book Reviews
  • *WHAT TO DO while you wait. 1-5
    • #1 What to do While You Wait, Checklists & Red Flags
    • #2 What to do While You Wait: Diagnosis, Denial & Doctors
    • #3 What to do While You Wait: Try New Things
    • #4 What to do While You Wait: Programs, Therapies, & Interventions
    • #5 What to do While You Wait: Know Your Child
  • ExtendedBookReviews~
  • Rules for David
  • A Friend Like Henry & All Because of Henry
  • No You Don't
  • Twirling Naked
  • Survival Guide
  • A Spot on the Wall
  • Child's Journey Out of Autism
  • Paula's Journal
  • How Can I Talk
  • 101 & 1,001 Tips
  • Hello, My Name is Max
  • What Color is Monday?
  • Spinning in Circles
  • Miracles Are Made
  • Secondhand Autism
  • I Wish I Were Engulfed in Flames:
  • 3500: An Autistic Boy's
  • Ido in Autismland
  • The Journey to Normal
  • All I Can Handle
  • He's Not Autistic, But...
  • The Horse Boy
  • Building in Circles
  • Autism Goes to School
  • I Am In Here
  • The Aspie Parent
  • Seeing Ezra: A Mother's Story
  • Autism: Turning on the Light
  • Autism: Why I Love Kids
  • Autism: Triplet Twist
  • Someone I'm With Has Autism
  • Making Peace with Autism
  • The ABC's of Autism Acceptance
  • The Long Ride Home
  • Autism by Hand
  • Knowing Autism
  • Autism Belongs
  • A Real Boy
  • A Curious Incident of the Dog in the Night
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LATEST BLOG POSTING...

April Autism Awareness Month

4/8/2021

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Picture
The #Autism core cognitive, social and sensory difficulties from childhood won’t disappear when adulthood arrives. Often acting childishly will also remain. Looking like a ‘child’ is the only thing that disappears with age.
 
Carpenter (2015) tells us that more than half of young adults with autism are disengaged from both #employment and #education, two years after leaving high school. He believes it is because of the following major remaining challenges of autism, into adulthood –
 
  • Remembering & following instructions
  • Adapting to changes & generalizing
  • Planning & organizing
  • Interpreting body language & facial expressions
  • Making small talk & socializing
  • Following unspoken social rules & expectations
 
Carpenter continues – social difficulties may frustrate college and career ambitions. And, in some regional areas, only the most severely disabled people are eligible for support or assistance, such as Medicaid-funded services.
 
Gardner (2013) marvels, I saw my son emerge from the changing rooms, and my soul swelled. What a handsome grown man he had become! Remembering that lost and lonely child, that child who had spent days rocking in a corner of a room, unable to communicate or relate, I thought, “Wow! Look at my incredible, handsome son now!
 
Heading off to college, Dale needs an awful lot of support and direction. He needs extra time if he’s to achieve his goals.”
 
< My Thoughts >       “Dale needs an awful lot of support and direction.” 
 
Throughout life, those with autism need support to a greater extent than the typical person learning a new task or operation. One suggestion in the literature has been that the designers of supported environments and educational settings find ways to compartmentalize and label tasks or operations, for persons with autism. For instance, incorporate more easily identified blocks time, areas of space, and/or use of specific tools/technology to support the adolescent and/or young adult, or adult with autism meet the challenges of their tasks.

Bowler, et al. (2015) tell us that the difference between ‘supported’ and ‘unsupported’ tasks was revealed in their study. Participants with autism found that having the ‘support’ of seeing things in a specific order, as with an organizational chart or by being given auditory cues, helped them become more effective. Having that type of support improved recognition as to the order of events or sequence.

They went on to say that those with autism have different degrees of difficulties with memory and may need to be cued to recall or recognize steps in a task or function. In the ‘discussion’ of the results, it was suggested that future support of persons with autism should be a result of spending time understanding and unpacking and clarifying the complexity of the task. These are reasonable adjustments required by most students and/or employees with autism, in order to become successful.
​
< My Thoughts >      “To make reasonable adjustments…”

When a student has a disability, which impacts upon learning college curriculum or when learning a new job, then there may be a requirement to undertake reasonable adjustments. These reasonable adjustments would help student performance, or addresses employee needs, allowing for the individual’s strengths and abilities of the persons with autism to surface.
 
Help from academia and from employers for persons with autism could come by –
  • providing necessary tutoring, technology, reframing, or retraining 
  • offering alternative tasks or assignments
  • insuring longer supported training or length of assignment periods
  • allowing more time off for rehabilitation, as needed
  • permitting additional breaks, as needed
  • changing inaccessible areas, or redesigning an area, as needed
  • relocating work/study areas to address sensory, or other needs

Wentz, et al. (2012) explored the idea of using technology to help support adolescents and young adults with Attention Deficit Hyperactivity Disorder (ADHD) and autism disorders, in employment and educational settings. The idea was based on the concept that it could be easier to get additional support from a coach in an online ‘Chat Room’ setting; which could be accessed during the day between the hours of 2 – 4pm.
 
< My Thoughts >      “…using technology to help support…”
 
Here is a LINK to what appears to be a very recent collection of technology support tools used to train or retrain persons with disabilities, including autism – “New resources & hidden gems from the NationAl Rehabilitation Information Center (NARIC) Collection. A Quick Look at the Research, a ‘Spotlight’ collection –
https://naricspotlight.wordpress.com/2021/04/07/autism-and-technology-for-independence-a-quick-look-at-the-research/
Disclaimer: Please note that I, Sara Luker do NOT have any connection with, nor am I a representative of the National Rehabilitation Information Center (NARIC). This LINK is offered only as an opportunity to begin to seek information of interest, regarding the use of technology for support to persons with disabilities.
 
Wentz believes that because the traditional ‘face-to-face’ communication is difficult for most individuals with autism, a computer-mediated communication from one’s residence was thought to be an easier facilitation of support. The coaches available during this time period included clinical psychologists or educational therapists with the common denominator of having vast experience with this Autism Spectrum Disorder (ASD) population.
 
Jones (2016) insists that it’s clearly time to admit that some Autistics – even some highly educated Autistics – are NOT going to be able to work. We need more legitimate work-at-home opportunities, more support and assistance at finding and keeping online employment. And, a lot of help in getting disability benefits for those who aren’t able to work full-time or at all.
 
Staff Writer (2018) states that so much is riding on the future, so that an autistic adult can live independently. That the time is now for gathering information, discussing possibilities, and to start working towards milestones for independence.
 
REFERENCES
 
Bowler, D. Galgg, S., et al. (2015). Brief Report: The Role of Task Support in the Spatial and Temporal Source Memory of Adults with Autism Spectrum Disorder; Journal of Autism Developmental Disorders; V45, p.2613 - 2317.
 
Carpenter, S. (2015). Learning Through Seeing & Doing; Science News, p18-20.
 
Gardner, N. (2013). All Because of Henry; eBook Edition.
 
Jones, S.R. (2016). The ABCs of Autism Acceptance; eBook 2016 Edition.

Staff writer (2018). Are There Ways An Autistic Adult Can Live Independently?; Retrieved online from – https://ecarevault.com/2018/01/autistic-adults-can-live-independently/
 
Wentz, E., Nyden, A., et al. (2012). Development of an Internet-based Support and Coaching Model for Adolescents and Young Adults with ADHD and ASD; A Pilot Study; Journal of Early Child & Adolescent Psychiatry; V:21, p611-622.
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    Author

         Just to let you know that I, Sara Luker, have put forth my best efforts in presenting what I have learned over my 30 years with autism, Sharing Extended Book Reviews of  stories about those who have gone before us.      
         Understand that all health matters ALWAYS require medical decisions/diagnosis/treatment by highly qualified and licensed individuals. See website DISCLAIMER.

         Here you will find excerpts containing a combination of selections, synopses, general information prose, quotes and references to peer-reviewed articles.

         Plus < My Thoughts >, which are my responses to the material; as a state certified educator with a 2013 Master’s Degree in Special Education, and over 30 years as Sonny’s mom.

         The BLOGs on this site are meant to be insightful and timely. Comments and Responses are welcomed.

         The offered DOWNLOAD material is organized in UNITs and Chapters. The autism information comes from –

    *Peer-reviewed scientific journal articles, informational     and educational-writer articles.

    *Prose, which explains the currently circulating general public knowledge.

    *Personal, < My Thoughts > which are ‘educated   guesses’ about what it all means.

    *Poignant synopses of published parent stories.

    *Pages filled with decisions, denial, cited references, definitions, appendices, and more.

     Hearing the words “this child has autism,” parents are often shell-shocked.

         Then, in the face of so many more questions racing through their minds, the doctor says, “Just go online and read everything you can about autism.”

         
    Yes, disturbingly this kind of professional advice is given to many of our families.

    ​  If you are one of those families, or clinicians, I hope this material will give you a good start.
     


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