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  • FREE ASD BOOK UNIT #1 How Will I Know If It Is Autism? Ch. 1 Checklists, Ch. 2 Red Flags, Ch. 3 CDC. APPENDIX A Informal Autism Checklist, APPENDIX B Red Flags APPENDIX C Developmental Screening
  • FREE ASD BOOK UNIT #2 Why Is It Autism? Ch. 1 Diagnosis & DSM-5, APPENDIX A ASD Screening Assessments, APPENDIX B PPD-NOS Pervasive Developmental Disorder, APPENDIX C Labels.
  • FREE ASD BOOK UNIT #2 Why Is It Autism? Ch. 2 Denial & Misdiagnosis, Ch. 3 Doctors & Direction, APPENDIX D ASD Findings, APPENDIX E Developmental Screenings.
  • FREE ASD BOOK UNIT #3 What Is Most Concerning? Ch. 1 Gross & Fine Motor Skills; Part 1 Poor Eating, Part 2 Toilet Training. APPENDIX A Toileting APPENDIX B Wandering.
  • FREE ASD BOOK UNIT #3 What Is Most Concerning (Cont.), Ch. 2 Speech & Language Communication (Includes Nonverbal Assisted Communication, Tantrums & Meltdowns).
  • FREE ASD BOOK UNIT #3 What Is Most Concerning? (Cont.) Ch. 3 Cognition, Temperament & Personality, Theory of Mind (ToM)
  • FREE ASD BOOK UNIT #3C (Concerning & Challenging Behavior) Behavioral Support Ideas: 5 Point Rating Scales, Power Cards, Social Stories, Visual Schedules What Is Most Concerning? Behavior Visual Support ideas, during challenging times.
  • FREE ASD BOOK UNIT #3C Behavior Support Five Point Rating Scale < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #3C Behavior Support Power Cards for Concerning ASD Behavior with < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #3C Behavior Support Social Stories for Concerning ASD Behaviors with < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #3C Behavior Support Visual Schedules for Concerning ASD Behaviors with < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #4 When is it Sensory? Ch. 1 Sensory Issues; APPENDIX A Sensory Checklist, APPENDIX B Sensory Profile
  • FREE ASD BOOK UNIT #4 When Is It Sensory? (Cont.) Ch. 2 Sensory Categories; Part 1. Hypo-Activity, Part 2. Hyper-Activity APPENDIX C (ADHD).
  • FREE ASD BOOK UNIT #4 When Is It Sensory? (Cont.), Ch. 2 Sensory Categories (Cont.), Part 3 SIRs, APPENDIX D Sensory Issue Assessments, APPENDIX E Stereotyped Behavior, Enhanced Perception.
  • FREE ASD BOOK UNIT #4 When Is It Sensory? (Cont.), Ch. 3 Sensory Integration. APPENDIX F Sensory Processing Scale (SPS), APPENDIX G Sensory Diet, APPENDIX H Sensory Categories
  • FREE ASD BOOK UNIT #5, What To Do While You Wait? Ch. 1 Getting To Know Your Child, Ch. 2 Social & Personal Awareness APPENDIX A Social Isolation APPENDIX B Spoons Theory
  • FREE ASD BOOK UNIT #5 What To Do While You Wait? (Cont.) Ch. 3 Child's Thinking, Learning Strengths & Weaknesses, Ch. 4 Working on Independent Daily Living Skills, APPENDIX C 8 Types of VPD, APPENDIX D Hidden Facts, APPENDIX E Learning Disabilities
  • FREE ASD BOOK UNIT #6 Where To Look for Resources? Ch. 1 Networking & Support a. Autism CARES B. Gov. Websites. APPENDIX A - Autism Network (AANE); Ch. 2 Insurance & Intervention, APPENDIX B Request for Services Letter.
  • FREE ASD BOOK UNIT #6 Where To Look for Resources? (Cont.), Ch. 3 Laws- Federal, State, Local, IEP, APPENDIX C Section 504 Plan, APPENDIX D Transition Plan, Ch. 4 Family Law, Autism Education, Bullying, APPENDIX E Due Process.
  • FREE BOOK UNIT #6 Where To Look for Resources? (Cont.) Ch. 5 Future Challenges; College, Career, Older Adult, Geriatrics. APPENDIX F Campus Life, APPENDIX G Respite Resources, APPENDIX H Additional Resources, APPENDIX I 8 Nurse Tips, APPENDIX J Guardiansh
  • FREE BOOK UNIT #7-0 Who May Help? Ch. 1 Instructional Programs,, Ch. 2 Therapies, Ch. 3 Other Therapies. APPENDIX A Early Intervention, Ch. 2 Therapies, Ch. 3 Other Therapies
  • FREE BOOK UNIT #7-1 Who May Help? Other Therapies ABA, CBT, DIR, OT, PECS, APPENDIX B Therapies Under ABA Umbrella
  • FREE BOOK UNIT #7-2 Who May Help? Other Therapies: RDI, SPD, ST, TEAACH
  • FREE BOOK UNIT #7-3 Who May Help? Other Therapies Programs Approaches; Meds, Diet,
  • FREE BOOK UNIT #7-4 Who May Help? CAMs 1. Acupuncture 2. Animal Assisted Therapy
  • FREE BOOK UNIT #7-5 Who May Help? CAMs 3. Anti Inflammation Therapy 4. Auditory Integration Therapy
  • FREE BOOK UNIT #7-6 Who May Help? CAMs 5. Chelation Therapy 6. Chiropractic Therapy
  • FREE BOOK UNIT #7-7 Who May Help? CAMs 7. Creative Therapy 8. Facilitated Communication
  • FREE BOOK UNIT #7-8 Who May Help? CAMs 9. Hyperbaric Oxygen 10. Immunoglobulin Infusions
  • FREE BOOK UNIT #7-9 Who May Help? CAMs 11. Massage Therapy 12. Mindfulness Meditation
  • FREE BOOK UNIT #7-10 Who May Help? CAMs 13. Neuro-Therapy 14. Physical Activity Program
  • FREE BOOK UNIT #7-11 Who May Help? CAMs 15. Stem Cell Therapy 16. Vitamin Supplements
  • GALLERY SLIDESHOW
  • *PREVIEW Books in Gallery
    • AMAZING ADVENTURES Extended Book Reviews
    • DIAGNOSIS, DOCTORS, & DENIAL Extended Book Reviews
    • SAVVY SOLUTIONS Extended Book Reviews
    • SCHOOL ON THE SHORT BUS Extended Book Reviews
  • ExtendedBookReviews~
  • Rules for David
  • A Friend Like Henry & All Because of Henry
  • No You Don't
  • Twirling Naked
  • Autism Mom's Survival Guide
  • A Spot on the Wall
  • A Child's Journey Out of Autism
  • Paula's Journal
  • How Can I Talk
  • 101 & 1,001 Tips
  • Hello, My Name is Max
  • What Color is Monday?
  • Spinning in Circles
  • Miracles Are Made
  • Secondhand Autism
  • I Wish I Were Engulfed in Flames:
  • 3500: An Autistic Boy's
  • Ido in Autismland
  • The Journey to Normal
  • All I Can Handle
  • He's Not Autistic, But...
  • The Horse Boy
  • Building in Circles
  • Autism Goes to School
  • I Am In Here
  • The Aspie Parent, the First Two Years.
  • Seeing Ezra: A Mother's Story
  • Autism: Turning on the Light
  • I Know You're In There
  • Autism: Why I Love Kids
  • Autism: Triplet Twist
  • Someone I'm With Has Autism
  • Making Peace with Autism
  • The ABC's of Autism Acceptance
  • The Long Ride Home
  • Autism by Hand
  • Knowing Autism
  • Autism Belongs
  • A Real Boy
  • A Curious Incident of the Dog in the Night
  • Today's Autism BLOG
  • Mobile Special
  • Home
  • About
  • Contact Us
  • Help Us Grow
  • Paid Link Disclosure
  • Privacy Policy
  • Know Autism, Know Your Child
  • New Information
  • Previous BLOGs Good Ideas
  • FREE ASD BOOK UNIT #1 How Will I Know If It Is Autism? Ch. 1 Checklists, Ch. 2 Red Flags, Ch. 3 CDC. APPENDIX A Informal Autism Checklist, APPENDIX B Red Flags APPENDIX C Developmental Screening
  • FREE ASD BOOK UNIT #2 Why Is It Autism? Ch. 1 Diagnosis & DSM-5, APPENDIX A ASD Screening Assessments, APPENDIX B PPD-NOS Pervasive Developmental Disorder, APPENDIX C Labels.
  • FREE ASD BOOK UNIT #2 Why Is It Autism? Ch. 2 Denial & Misdiagnosis, Ch. 3 Doctors & Direction, APPENDIX D ASD Findings, APPENDIX E Developmental Screenings.
  • FREE ASD BOOK UNIT #3 What Is Most Concerning? Ch. 1 Gross & Fine Motor Skills; Part 1 Poor Eating, Part 2 Toilet Training. APPENDIX A Toileting APPENDIX B Wandering.
  • FREE ASD BOOK UNIT #3 What Is Most Concerning (Cont.), Ch. 2 Speech & Language Communication (Includes Nonverbal Assisted Communication, Tantrums & Meltdowns).
  • FREE ASD BOOK UNIT #3 What Is Most Concerning? (Cont.) Ch. 3 Cognition, Temperament & Personality, Theory of Mind (ToM)
  • FREE ASD BOOK UNIT #3C (Concerning & Challenging Behavior) Behavioral Support Ideas: 5 Point Rating Scales, Power Cards, Social Stories, Visual Schedules What Is Most Concerning? Behavior Visual Support ideas, during challenging times.
  • FREE ASD BOOK UNIT #3C Behavior Support Five Point Rating Scale < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #3C Behavior Support Power Cards for Concerning ASD Behavior with < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #3C Behavior Support Social Stories for Concerning ASD Behaviors with < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #3C Behavior Support Visual Schedules for Concerning ASD Behaviors with < My Thoughts > by Sara Luker
  • FREE ASD BOOK UNIT #4 When is it Sensory? Ch. 1 Sensory Issues; APPENDIX A Sensory Checklist, APPENDIX B Sensory Profile
  • FREE ASD BOOK UNIT #4 When Is It Sensory? (Cont.) Ch. 2 Sensory Categories; Part 1. Hypo-Activity, Part 2. Hyper-Activity APPENDIX C (ADHD).
  • FREE ASD BOOK UNIT #4 When Is It Sensory? (Cont.), Ch. 2 Sensory Categories (Cont.), Part 3 SIRs, APPENDIX D Sensory Issue Assessments, APPENDIX E Stereotyped Behavior, Enhanced Perception.
  • FREE ASD BOOK UNIT #4 When Is It Sensory? (Cont.), Ch. 3 Sensory Integration. APPENDIX F Sensory Processing Scale (SPS), APPENDIX G Sensory Diet, APPENDIX H Sensory Categories
  • FREE ASD BOOK UNIT #5, What To Do While You Wait? Ch. 1 Getting To Know Your Child, Ch. 2 Social & Personal Awareness APPENDIX A Social Isolation APPENDIX B Spoons Theory
  • FREE ASD BOOK UNIT #5 What To Do While You Wait? (Cont.) Ch. 3 Child's Thinking, Learning Strengths & Weaknesses, Ch. 4 Working on Independent Daily Living Skills, APPENDIX C 8 Types of VPD, APPENDIX D Hidden Facts, APPENDIX E Learning Disabilities
  • FREE ASD BOOK UNIT #6 Where To Look for Resources? Ch. 1 Networking & Support a. Autism CARES B. Gov. Websites. APPENDIX A - Autism Network (AANE); Ch. 2 Insurance & Intervention, APPENDIX B Request for Services Letter.
  • FREE ASD BOOK UNIT #6 Where To Look for Resources? (Cont.), Ch. 3 Laws- Federal, State, Local, IEP, APPENDIX C Section 504 Plan, APPENDIX D Transition Plan, Ch. 4 Family Law, Autism Education, Bullying, APPENDIX E Due Process.
  • FREE BOOK UNIT #6 Where To Look for Resources? (Cont.) Ch. 5 Future Challenges; College, Career, Older Adult, Geriatrics. APPENDIX F Campus Life, APPENDIX G Respite Resources, APPENDIX H Additional Resources, APPENDIX I 8 Nurse Tips, APPENDIX J Guardiansh
  • FREE BOOK UNIT #7-0 Who May Help? Ch. 1 Instructional Programs,, Ch. 2 Therapies, Ch. 3 Other Therapies. APPENDIX A Early Intervention, Ch. 2 Therapies, Ch. 3 Other Therapies
  • FREE BOOK UNIT #7-1 Who May Help? Other Therapies ABA, CBT, DIR, OT, PECS, APPENDIX B Therapies Under ABA Umbrella
  • FREE BOOK UNIT #7-2 Who May Help? Other Therapies: RDI, SPD, ST, TEAACH
  • FREE BOOK UNIT #7-3 Who May Help? Other Therapies Programs Approaches; Meds, Diet,
  • FREE BOOK UNIT #7-4 Who May Help? CAMs 1. Acupuncture 2. Animal Assisted Therapy
  • FREE BOOK UNIT #7-5 Who May Help? CAMs 3. Anti Inflammation Therapy 4. Auditory Integration Therapy
  • FREE BOOK UNIT #7-6 Who May Help? CAMs 5. Chelation Therapy 6. Chiropractic Therapy
  • FREE BOOK UNIT #7-7 Who May Help? CAMs 7. Creative Therapy 8. Facilitated Communication
  • FREE BOOK UNIT #7-8 Who May Help? CAMs 9. Hyperbaric Oxygen 10. Immunoglobulin Infusions
  • FREE BOOK UNIT #7-9 Who May Help? CAMs 11. Massage Therapy 12. Mindfulness Meditation
  • FREE BOOK UNIT #7-10 Who May Help? CAMs 13. Neuro-Therapy 14. Physical Activity Program
  • FREE BOOK UNIT #7-11 Who May Help? CAMs 15. Stem Cell Therapy 16. Vitamin Supplements
  • GALLERY SLIDESHOW
  • *PREVIEW Books in Gallery
    • AMAZING ADVENTURES Extended Book Reviews
    • DIAGNOSIS, DOCTORS, & DENIAL Extended Book Reviews
    • SAVVY SOLUTIONS Extended Book Reviews
    • SCHOOL ON THE SHORT BUS Extended Book Reviews
  • ExtendedBookReviews~
  • Rules for David
  • A Friend Like Henry & All Because of Henry
  • No You Don't
  • Twirling Naked
  • Autism Mom's Survival Guide
  • A Spot on the Wall
  • A Child's Journey Out of Autism
  • Paula's Journal
  • How Can I Talk
  • 101 & 1,001 Tips
  • Hello, My Name is Max
  • What Color is Monday?
  • Spinning in Circles
  • Miracles Are Made
  • Secondhand Autism
  • I Wish I Were Engulfed in Flames:
  • 3500: An Autistic Boy's
  • Ido in Autismland
  • The Journey to Normal
  • All I Can Handle
  • He's Not Autistic, But...
  • The Horse Boy
  • Building in Circles
  • Autism Goes to School
  • I Am In Here
  • The Aspie Parent, the First Two Years.
  • Seeing Ezra: A Mother's Story
  • Autism: Turning on the Light
  • I Know You're In There
  • Autism: Why I Love Kids
  • Autism: Triplet Twist
  • Someone I'm With Has Autism
  • Making Peace with Autism
  • The ABC's of Autism Acceptance
  • The Long Ride Home
  • Autism by Hand
  • Knowing Autism
  • Autism Belongs
  • A Real Boy
  • A Curious Incident of the Dog in the Night
WWW.SARASAUTISMSITE.COM

Latest BLOG ~
with < My Thoughts >
​by Sara Luker

Today's BLOG ~ This Is Not My Child

8/20/2025

0 Comments

 
This is not the child that I thought I was going to have. This child does not seem to be developing normally.
​
< My Thoughts >    “…developing normally.”
​

What is happening? How can I cope with these behaviors?
Picture
​
Here are some of the concerns parents have when their child has a lack of ‘age-typical’ development in one or more of these areas –
​
  • gross/fine motor skills (including, ‘eating & toileting’)
  • speech/language communication (including, ‘non-verbal’)
  • cognition, temperament/personality expression (including, being gifted)
  • social/personal awareness (including, having no friends)
  • daily living skills (including, no reference to time)
 
To meet diagnostic criteria for ASD according to DSM-5, a child must have persistent deficits in each of the areas of social communication and interaction.
 
The severity of those deficits is based on social communication impairments and restricted, repetitive patterns of behavior. For either criterion, severity is described in 3 levels:
​
  • Level 3—Requires very substantial support
  • Level 2—Requires substantial support
  • Level 1—Requires support

Also, a child must have persistent inconsistencies in severity of impairment across cognitive skills, adaptive behavior, and autism symptoms. Traditionally, these deficits have been described and / or portrayed in a 'linear' spectrum.
Picture
These linear functioning labels often fail to recognize the unique strengths and weaknesses of an autistic individual. People who are considered “low-functioning” can be dismissed or denied opportunities, while those considered “high-functioning” may be denied support services they need.

< My Thoughts >     “…linear functioning labels…”

The linear autism spectrum line ‘simplifies’ autism spectrum disorder (ASD). But autism is not simple, almost never linear, and ‘spectrum’ means a complex ‘variety’ of changing functioning over time. Not a static ‘band’ of functioning determined at the time of testing.

Heyworth, M. (2024) says, "Imagine if I asked you to place yourself on a two-dimensional line of functioning. Nothing to do with Autism, just a standard, regular, non-autistic functioning line. How accurate would it be?"

REFERENCE:

Heyworth, M. (2024). Introduction of Autism, Part 4: The Autism Spectrum is Not Linear. Retrieved online from –
https://reframingautism.org.au/introduction-to-autism-part-4-the-autism-spectrum-is-not-linear/

End of Today’s BLOG ~ This Is Not My Child. Next, we will explore the ways to categorize your concerns, from simple to complex.

​My appreciation for sharing, commenting, and 'liking' on Facebook! Also, please note that my aim is to remove all other than government and / or public 'links' from the website. My reasoning is that they may suggest endorsement or approval of their content. It is better that individuals 'search' for desired 'links' in one's specific area of interest and location. Thank you for your understanding.

Regards,

​Sara Luker

DISCLAIMER
Know Autism – Know Your Child: with < My Thoughts > by Sara Luker
 
Just to let you know that I, Sara Hayden Luker, have put forth my best efforts in presenting what I have learned about autism, by sharing the resources, stories, and studies of those who have gone before us.  Any author’s mention of products, services, treatments, and interventions or actions are not to be considered an endorsement, thereof. Know that to some, autism is an ‘unregulated business’. The content of this website material, digital or in any other form does not represent medical advice; nor does it constitute medical suggestions in any way. The material, including any downloadable parts, is for informational and/or educational purposes only. Your download and/or use of any of this material indicates your acceptance of this disclaimer. No ‘rights’ are given or transferred.



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