(1% indicates location in the Kindle version of the book, instead of page numbers.)
< Excerpts from Ron’s (Ben’s dad) Author Note >
1% First of all, if you picked this book expecting to read a story about how a theme park attraction miraculously cured an autistic boy then you are going to be sadly disappointed. Although Ben’s time spent with Snow White’s Scary Adventures had a dramatic and positive effect on him, at nineteen years old he still remains a profoundly disabled individual. He continues to require full-time supervision and is thus far completely incapable of living independently. Every single penny of any revenue this book generates will go directly into Ben’s Special Needs Trust to provide for his long term care. Next, although this is Ben’s story, it is by necessity told from my perspective.
2% Much of this book has been constructed based on contemporaneous journal entries or blog posts I wrote at the time these things happened. A significant part of this book is based purely on my (author Ron Miles) memories of past events.
While it was Walt Disney World and Snow White’s Scary Adventures that provided the fulcrum to move Ben’s world, to a very large degree it has been the dedicated educators who have given us the lever to take advantage of that opportunity.
< End of excerpts from Ron’s (Ben’s dad) Author Note >
< My Thoughts >
This was an ode to Disney and a magical place and a magical boy named Ben. Much of this book has been constructed based on contemporaneous journal entries. Many parents keep a journal of their journey with autism.
< Excerpts from Ron’s book >
2% Benjamin was a genuine Christmas gift delivered by C-section the day after Christmas.
4% The next six months passed exactly as you would imagine, with diapers and bottles and many sleep-deprived nights. Ben was a normal happy infant and we were a normal happy-but-exhausted family. Then one day I was unceremoniously fired from my job. The first crack in the dam of our marriage.
Three months later I was still under-employed and we were subsisting on part-time jobs. At nine months began to be concerned about Ben’s development. He was lagging behind on some of the standard metrics. He was not displaying the kind of cognitive and sensory skills that are expected by that age.
Ben’s pediatrician assured us that while Ben was certainly on the low end of the bell curve…it wasn’t that unusual and every child is unique and progresses at their own rate.
5% At Ben’s twelve month check-up he showed no significant improvement over his nine-month exam. By now the pediatrician was genuinely concerned and referred us to specialists for additional testing.